Broken Pencil: Amidst overdose crisis, survival is an art

DECLAN KEOGH  

Amidst overdose crisis, survival is an art

WRITTEN BY DECLAN KEOGH • PHOTOGRAPHY BY DECLAN KEOGH AND JEFF BIERK

A few years ago, Les William Harper did what most people have done at one time or another: he sought his mother’s opinion.

The 46-year-old Cree harm reduction worker and artist, who works at a safe-injection site in Toronto, wanted to know how she thought the overdose crisis would end and what he could do to help it along.

Elder Pauline Shirt is a survivor of Canada’s residential schools for Indigenous children. She was forced to spend years away from her family, suffering abuse under a system many, including the Truth and Reconciliation Commission of Canada, call genocide.

“That was her world she was living in,” Harper says. “She never knew if it was ever going to end.”

But it did end, eventually, and she was finally able to leave and carry on with her life. She ended up in Toronto where, in 1976, she and her then-husband Vernon Harper opened Kapapamahchakwew, or the Wandering Spirit Survival School, the first Indigenous day school in Canada.

Shirt told her son to be steadfast in his commitment to the work, and to his heritage. Canada tried to erase her culture but, she said, Indigenous teachings and practices were precisely the things that kept her alive.

“It just showed that it’s not going to stay like this. If we keep on fighting and doing what we need to do, we will find that answer,” Harper says.

Today, his mother’s advice — to honour and practice cultural traditions — grounds Harper’s work as a harm reduction worker in drug user communities, as well as in his artistic practice, painting murals. Harper works with community members to paint murals around Toronto, 10 so far. He says it’s important to bring people in to create art together, whether they’re from community centres, housing co-ops, or safe injection sites. He says it allows each individual to express themselves in a shared social context.

“I’ve always believed in art,” he says. “I want to take everyone else for the ride too.”

Crisis wears on

As Canada remains in the deadly grip of an unprecedented overdose crisis, some are turning to art to raise awareness, cope with grief and trauma, or to bring power to the community. The slow drip of solutions from health and government officials have already forced those on the front line to take things into their own hands. In Toronto, illegal safe-consumption sites started popping up in 2017, eventually forcing the provincial government to fund and sanction many across Ontario.

Despite incremental progress, people are still dying at an increasing rate. There were 4,460 opioid-related overdose deaths last year, up from 3,017 in 2016 — nearly a 33 percent increase — according to the Public Health Agency of Canada. The statistics paint a grim picture: more than 11,500 Canadians died of an apparent opioid-related overdose between January 2016 and December 2018. Fentanyl or a fentanyl analogue were involved in nearly three-quarters of the deaths.

Harm reduction workers have been saying something has to give.

The two worlds, harm reduction and art, have long overlapped. But as the crisis wears on, art is emerging as its own form of harm reduction — from an individual level to a broader political response. For Harper, the connection is personal. He’s been working in harm reduction for over a decade and has a deep connection with the community.

“There are people that I’ve grown up with that come into these sites,” Harper says. “I have relatives that come into these sites.”

‘I work in my community;
my community is me’

Les Harper touches up Two Worlds, a community mural project at The Bickford Centre in Toronto. The centre of the piece is an outline of a syringe, swaddled in purple. This colour represents the deadly opioid fentanyl. Photo by Declan Keogh.

Les Harper touches up Two Worlds, a community mural project honouring Indigenous women’s role in the overdose crisis. The centre of the piece is an outline of a syringe, swaddled in purple. This colour represents the deadly opioid fentanyl. Photo by Declan Keogh.

Wandering Spirit, which continues to operate in Toronto’s east end, is where Harper’s artistic interest blossomed. Woodland Art, originally brought to Canadian consciousness by esteemed Ojibwe artist Norval Morrisseau, remains his favourite.

Harper has adapted the Woodland style for his mural projects, an approach to painting characterized by rich, vibrant colours portraying symbolism and spirituality drawn from Anishnaabe and other Indigenous traditions.

It’s a natural fit. Woodland Style juxtaposes immemorial customs with a contemporary form; Harper, steeped in Indigenous teachings, uses them to guide his work amidst the concrete and steel of Toronto. Like his mom, he fights for life where there is death.

“My work, my passions and my personal life all connect together,” he says. “I work in my community; my community is me.”

A mural project at the Bickford Centre, in Toronto’s Koreatown, holds special significance to Harper. Two Worlds is a 20-foot-long homage to both the overdose crisis and murdered and missing Indigenous women and girls. The idea came to him during a fasting ceremony, where he prayed for guidance on how to get his message to the world.

It’s the only mural in Ontario that looks at the overdose crisis from an Indigenous perspective.

The piece depicts two faceless women in traditional pink dresses, framed by richly coloured flowers, strawberries, and a bird on a bright yellow background. In the centre is a syringe wrapped in purple. He chose purple to represent fentanyl and its role in the overdose crisis. The women represent strength and resilience.

“[Women are] why our culture is still here,” Harper says.

Harper, one of only a handful of Indigenous harm reduction workers on the front line of the overdose crisis, hopes his art will help foster dialogue between those inside and outside his community.

“People will walk by that mural and they’ll see that syringe and that Indigenous artwork and they’ll be a part of that now,” he says.

Nearly one million Canadians reported using illegal drugs in 2017, according to Statistics Canada — not including then-restricted marijuana. Yet, drug users are often imagined as a monolith. Harper hopes community art can disrupt commonly held stereotypes.

“When people first see people or think of people that are using drugs, they see them as one person,” he says. “They see them as a drug user, not as a person that’s an artist or … writer.”

“My work, my passions and my personal life all connect together,” says Les Harper, left. The harm reduction worker collaborates with community members like Bradley Nolan, pictured, on public art projects. Nolan says art helps distract them from thinking too much about loved ones who have died as a result of opioid overdose. Photo by Declan Keogh

Bradley Nolan, an Ojibwe service user originally from Garden River First Nation, helped Harper paint Two Worlds. Like Harper, 31-year-old Nolan has lost a lot to fentanyl: their brother, partner, and best friend.

“[Art] gets me out of the frame of mind of thinking about loved ones who have passed away from opiates,” says Nolan. They get a good feeling when they see the mural, because they know they contributed to something that stands out in the community.

“Somebody can make a piece of art and it can mean the world to them,” Nolan says. “A powerful piece of art makes people think.”

Honouring the lives of loved ones while they’re still living is an important part of Indigenous culture, Harper says, which is why the mural at the Bickford Centre is so meaningful to him.

“No matter what is happening in Indigenous culture and our lives, we’re still going on forward,” he says.

Grief and the canvas

On Jan. 7, 2019, Kira Hamilton cried throughout the night for no apparent

reason. “I didn’t have anything to cry about but I just knew something was wrong,” she says.

The next day, Hamilton, 38, went in to work at Sistering, an agency supporting at-risk women, where she does harm reduction and housing support.

I had a rough night, she thought. But I’m at work with my people. But people were staring at her, and no one said a word to her as she made her way to her office. What the hell is going on here, she asked herself.

Then she received the call. “You need to sit down,” the coworker said. “Crystal died. They found her last night. I’m so sorry.”

Crystal Papineau was found dead in a clothing donation bin. The 35-year-old’s death became front page news for months, as advocates demanded better housing and support for street-involved people — even sparking a public consultation in Toronto on the safety of donation bins.

Papineau was Hamilton’s closest client at work. “Every day … when she went off to use, or I would go home from work, she’d say ‘I love you.’” Hamilton recalls. “And, I said, ‘I love you back.’ Because she needed to hear that from somebody.”

“When you work that closely with somebody, they kind of become your family,” she says. “I cried, but I knew she wasn’t in pain anymore.”

Hamilton echoes what many in the harm reduction community describe: an impossibly complex relationship with their clients. One where the duty of care intermingles with human nature, emotion and camaraderie.

Eight more of Hamilton’s clients have died this year, many of them as a result of overdoses. When Broken Pencil reached out to Hamilton for this article, she was attending a funeral for a client. As a multi-disciplinary artist who studied fine arts at Georgian College, she feels somehow duty bound to use her paintbrush to eulogize Papineau. She envisions a darkly baroque and realistic image of a skeleton floating through the air, thick and textured like red velvet. In the skeleton’s stomach is a bright red balloon, representing “the person she was when she was alive, [and which] will keep her alive in my mind,” she says.

But when she sits down in front of her easel, Hamilton can’t bring herself to do what she had done hundreds of times: press the bristles into the paint, and gently apply it to the canvas.

Hamilton says she feels stuck, badly wanting use art to cope with the trauma of her work but, ultimately, being unable to do so. She likens it to the feeling she gets at work: spending every day trying to keep her clients alive, while faced with stagnating political action, funding cuts, and increasingly dangerous drug supplies.

Hamilton talks with a lot of her clients about art; what they’re working on, and her paintings that hang in her office. She’s planning to start an art group at work for some of her clients.

“It’s healing without realizing it, because when you’re putting the paint on the can- vas, you’re not thinking about the stuff that we have to deal with.”

Truth to power

Jimmy, pictured, often appears in the photography of Jeff Bierk. The Toronto artist has become a default documentarian for communities directly hit by the terrifying surge in overdose deaths. Photo courtesy of Jeff Bierk

The first time Jeff Bierk tried to get sober was after his mom died while he was in his early 20s. Shortly after, his partner at the time was in and out of the hospital.

“I felt new to the world because I was clean,” says Bierk, a Toronto-based photographer. “I had no idea who I was, I had not processed or even dealt with all the grief of both my parents dying at a young age.”

He needed a way to grieve without using drugs again. So Bierk, now 38, started to take pictures of hospital curtains between 2009 and 2010. The photos were mounted as an exhibit called Curtain at a gallery in Brantford earlier this year.

A decade after he took them, he says he’s happy to show the photos with the privilege of reflection. “I was able to re-contextualize it with all the time in between. All these ways I’ve been able to heal outside of an art practice,” Bierk says. “At the root of it was talking about my experience with death and addiction.”

Bierk is best known for his honest photos of people he knows. Many of these friends come from far-flung places but wound up in Toronto. Many struggle with housing or health; many are drug users. The images candidly depict life on the streets, a world many never experience. It’s easy for people to project assumptions onto the photos. When people see a picture of Jimmy, one of Bierk’s best friends who frequently appears in his work, they see a tough man, covered in blown-out DIY tattoos. They see salt-and-pepper hair and deep lines on his face that come with years of alcohol consumption and cold winters. It’s easy to simply read Jimmy as a drug addict or a homeless person. An undesirable.

Bierk sees beauty; he sees his friend.

“Jimmy is an example of how to be. He’s the example to me of all these beautiful things that I don’t see in a lot of other people,” Bierk says. “It’s just this freedom.”

Bierk emphasizes that the people who appear in his images are his friends and his collaborators, disavowing the term “subject.” Bierk is seen in the self-portrait Me and Jimmy in an intimate, stylized embrace with his most frequent collaborator. Photo courtesy of Jeff Bierk.

Bierk has worked hard to get away from the traditional way photographers interact with their subjects. Jimmy is not Bierk’s subject; they are collaborators, and they split any profits. Often, Jimmy will come to an exhibit of Bierk’s work and visitors will get to meet and talk with him.

The shows “offer the potential for people to see Jimmy in the fullness of who he is … the art is a conduit for this kind of connection,” Bierk says.

In late February, Bierk took part in an open panel discussion on addiction and homelessness as part of Curtain’s run in Brantford, a city that’s been hit hard by the overdose crisis.

Between July 2017 and June 2018, Brantford and the surrounding area had one of the highest rates of overdose deaths in Ontario. Mayor Kevin Davis and other local politicians listened from the crowd as Bierk used his time on the panel to call for the city to open a safe injection site. “I remember that feeling where I was like, ‘Oh, fuck. I actually have to speak the truth to the power in this situation,’” he says.

“I spoke about my experience in a really vulnerable way,” he says, telling the crowd he was lucky and privileged — he got out of jail and was able to do a detox program where many don’t have that opportunity.

Not long after the talk, a Brantford friend messaged him with news: Brantford was going ahead with a study on opening a safe-consumption site in the city.

“It’s not that [the announcement] directly happened because of me or the art, but the art and my experience was this conduit to potentially shift the consciousness of people in the audience,” Bierk says.

Councillor Joshua Wall, whose constituency includes downtown Brantford, also attended the talk. He says the talk was one of many factors that lead the health unit to explore a safe-consumption site.

“It absolutely impacted me,” he says. “Art has the ability to inspire and elicit such strong emotions.”

“It’s unbelievably important to speak with people who have been there, who have been through turmoil and who can speak firsthand on how they’ve overcome,” Wall says. “There are so many people involved with [drug use] who haven’t been through it. There’s merit in listening to somebody who’s actually been there.”

Still, Bierk says he remains skeptical about art’s potential to foster societal change. He notes that the art world can be inaccessible. But, towards the end of our long conversation, he seems more open to the idea that the work he’s doing is creating dialogue and making people happy — even if it begins as a something for him and his friends.

‘This is the Indian that saved us’

Les Harper’s favourite colour is pink — It always has been. He says it stems from the old saying that when the evening sky is pink, the next day will be better.

He moves with an ingrained, deeply held optimism in the face of an acute crisis. Just as his mother and her generation survived, so too will he and his.

“People go through so many hardships,” he says. “Hopefully tomorrow will come and it’ll be a beautiful day.”

Harper often quotes John Trudell, a Native American activist, author and poet from Omaha, Neb., who discussed the “Drunken Indian” stereotype.

“Without them [the Drunken Indian], we wouldn’t be here today,” Trudell said in a previous interview. He said that, after centuries of forced assimilation, genocide, and oppression, there were generations that simply had to survive, by any means necessary.

“This is the Indian that saved us, because this is the Indian that said, ‘I can’t be who I am and I’m not going to be who you tell me to be, so I’ll just be nothing” he said. “I’ll be something else. I’ll just do my time and get through it. I’ll erase the pain and get through it. But I will not become you.”

Harper applies this framing to the over- dose crisis and the drug war. “We, as Indigenous people in our activism, have a great debt that we owe to the Drunken Indian because they survived,” Harper says. “We thought that one day we would be annihilated … And we weren’t.”

Harper sees parallels in the drug user community, where people remain vibrant and resilient despite terrible odds. “In this crisis that’s going on, people right now are still being the wonderful, beautiful people that they are.”

Many people in Harper’s community have died.

There is deep heartache.

But, each night, he sees pink — even in the middle of a storm.

East Toronto Health Partners (ETHP) submit full application to become an Ontario Health Team for East Toronto

October 9, 2019

Hon. Christine Elliott
Ontario Deputy Premier and Minister of Health
Hon. Merrilee Fullerton
Ontario Minister of Long-Term Care
College Park, 5th Fl.,
777 Bay St, Toronto
ON M7A 2J3

RE: Ontario Health Team Submission from the East Toronto Health Partners

Dear Ministers Elliott and Fullerton;

In partnership with those who receive care and those who provide care in East Toronto, the East Toronto Health Partners (ETHP) are pleased to submit our full application to become one of Ontario’s first Health Teams. In your call for applications, you invited us to be bold in our thinking, and we have taken this to heart. We also recognize that with the changes envisioned
for health care in Ontario, there are both opportunities and inherent risks. We want you to know that we are fully committed to building a bolder, brighter future for the delivery of health and social care for our local communities, and we look forward to the support of your Ministry to help us transform our systems of care.

Our vision is to work with our community to co-design ‘A System without Discharges’: A seamless continuum of care focused on population health, with programs tailored to our 21 local neighbourhoods and communities. We have grounded our vision in the Quadruple Aim, with goals to improve quality of care and the experience of our patients and caregivers, enhance health and wellness for clinicians and other front-line providers, improve overall population health, and increase the value of investments in health and social care.

About Our Population
Collectively, we serve the approximately 300,000 children, adults and seniors who live in the multiple communities that comprise East Toronto. Our boundaries span from the Don River to the West, to Warden in the East, and from South of Eglinton Ave to Lake Ontario; and include priority neighbourhoods such as Thorncliffe Park and Flemingdon Park. We also serve Ontarians across the Greater Toronto Area and beyond for a total attributed population of 375,000. When our Ontario Health Team reaches maturity, we will have a full population health and integrated care model that supports our entire population; however, in Year 1 we will focus on integrating care for the following three populations:

1. Seniors with chronic care needs and caregivers: East Toronto has a significant population of seniors (53,712) and heavy burden of chronic illnesses including Chronic Obstructive Pulmonary Disease (3,937 people) and Congestive Heart Failure (2,734 people). Seniors with chronic care needs experience high levels of hospital admissions, and long lengths of stay, contributing to hallway medicine pressures. We selected this population because of the risk factors within the East Toronto seniors’ population with chronic care needs, including high rates of caregiver distress (up to 47% in some of our communities). The redesign of care for this population will build on what we’ve heard from patients, families, caregivers, and health care providers about the current challenges they face with fragmented services and poor transitions of care.

2. Youth Mental Health and Wellness: As rates for mental health issues in youth are rising across Toronto and Ontario, some neighbourhoods in our region such as Taylor Massey have three times higher Emergency Department (ED) use for youth mental health than the Toronto average. East Toronto has approximately 7,977 youth living with mental health conditions. Our initial work with youth in East Toronto has identified several opportunities for us to co-design improved access to care and better support youth mental health and well-being.

3. Substance Use and Health: East Toronto providers serve significant numbers of people with issues of substance use. The Canadian Institute for Health Information identified 7,288 people in our attributed population with diagnosed Drug/Alcohol Dependency; often these individuals are disconnected from basic primary care, have significant issues related to the social determinants of health, and have high rates of emergency room use and hospital admission. We have identified opportunities with patients and providers to coordinate harm reduction, treatment, and crisis supports to improve health for this population.

Our work with our priority populations will be grounded in a neighbourhood approach; starting with the five “Neighbourhood Improvement Areas” as defined by the City of Toronto. This neighbourhood-based approach is intended to help us address some of the priority equity considerations facing our population; a high proportion of newcomers and immigrants, patients who are uninsured, individuals and families with lower incomes, and engagement of Indigenous and Francophone populations. Of our total attributed population of 375,000, the 178 family practice physicians who have joined the new East Toronto Family Practice Network (EasT-FPN) care for approximately 200,000 patients. In addition, the priority populations for Year 1 aggregate to roughly 69,000 people.

Through our members and the scope of services we provide, ETHP will provide actively coordinated care for roughly 20% of the total Year 1 population: a total of 13,800 individuals. In addition, the 200,000 residents who access primary care through family physicians who are part of EasT-FPN will have access to integrated care through our SCOPE program, interprofessional care teams, fall/winter community surge investments and other existing programs in East Toronto.

About Our Team and How We Will Work Together
The ETHP are building on a 25-year history of collaboration to improve the health of our local population through collaborations such as Partners for Health and the Solutions Network. In late 2017, the CEOs of five organizations that represent the continuum of healthcare came together to form the foundation for an integrated care network (ETHP). Over the past two years, the ETHP has been working with patients, families, community representatives and a range of partner organizations towards this goal.

In October 2019, the ETHP welcomed our newest Anchor Partner, the East Toronto Family Practice Network (EasT-FPN) which was created to be the representative voice of the over 260 family physicians in East Toronto. EasT-FPN has established an Interim Board of Directors, Interim Executive and a Memorandum of Understanding for engaging with family physicians. Over the next few weeks, EasT-FPN is hosting a series of engagement sessions for family physicians to learn about the work of the ETHP and encourage physicians to participate in the design and development of our Ontario Health Team. To date, 178 family physicians have joined the EasT-FPN, who care for approximately 200,000 patients as part of the ETHP.

The ETHP is governed through an Anchor Partner model, with each member of our anchor organizations representing a different care sector. Our starting point for governance has been a ‘network of networks’ model which has enabled a small group of trusted partners, which represent the full continuum of care, to facilitate change and improve care through a streamlined decision-making process. The current members of the East Toronto Health Partners are:

  • Patients, Families and Caregivers** East Toronto Family Practice Network – EasT-FPN
  • Michael Garron Hospital (Toronto East Health Network)
  • Providence Healthcare (Unity Health Toronto)
  • South Riverdale Community Health Centre (on behalf of East Toronto CHCs)
  • VHA Home HealthCare (liaison to home care providers)
  • WoodGreen Community Services (representing home and community care, community mental health, addictions and developmental services, community support services and housing)

The organizational members above will be formal signatories to the Joint Venture agreement and to the eventual accountability agreement with the Ministry of Health. Our Joint Venture agreement, which will be signed by the Anchor Partners in October 2019, outlines our shared principles, how we will work together, and how our partnership will evolve over time.
In addition, the ETHP network of providers includes two other levels of partnership:

  • Engaged Partners, actively involved in the planning and delivery of specific initiatives; and,
  • Supporting Partners, who remain informed and involved, but may not be active in planning or delivery.

A letter of support from our partners is included in the supplemental information of our application. Together, all of our partners deliver the full range of services needed to support our Year 1 populations.

**Over the last 6 months, the ETHP has hosted a number of community engagement sessions to involve patients, caregivers and providers in helping us co-design the future of care for our priority populations. To help guide our ongoing work, a Patient and Caregiver Engagement Planning Team consisting of advisors from existing Patient and Family Advisory Committees from several East Toronto organizations was established to advise on different approaches to patient, family, caregiver and community engagement for the ETHP. Our Patient and Caregiver Engagement Planning Team is assisting us with next steps in this work, including a process to identify ongoing membership at the Governance level to ensure patient and caregiver involvement in strategy, priority setting and decision making.

We will continue to work with all our communities as we redesign the future of care in East Toronto. To support this work, the ETHP has developed a Community Engagement Framework; a best practice guideline for current and future engagement activities within the OHT planning context. Patients, community members and providers were engaged in a joint working group with representation from the East and Downtown East OHTs to develop this framework.

How We Will Transform Care
The ETHP see significant opportunities to improve care for our population and health system performance as we create an integrated health system. Our shared vision is centred on creating ‘a system without discharges’; one connected system of health care and support for all residents in East Toronto. Our most important improvement opportunities are fully aligned to this shared vision:

1) Create a one-team approach with patients, caregivers and providers: This includes engaging with care recipients to design care transformations that meet their needs, supporting all our staff to work to their full scope, and building stronger networks between providers who deliver similar and complementary services. For our Year 1 focus, we will expand our existing integrated, interprofessional team-based care models and simplify access to community support services. For our youth and adults with mental health needs, our focus will be on building skills, relationships and trust, to support them with their goals.

2) Coordinated Care tailored to Local Neighbourhoods; scaling up our early successes: This includes evaluating and expanding our existing integrated care initiatives and shifting more care from hospital to community. We will co-design tailored solutions for our 21 neighbourhoods to address their distinctive needs, ranging from designated improvement areas to higher income communities. For our Year 1 focus, we are targeting improvements to three Neighbourhood Improvement Areas; Thorncliffe Park, Taylor-Massey and Oakridge. We will also expand our Home 2Day program to support a broader range of patients with cardiac and respiratory conditions, increase our community investments during the flu season, and expand our interprofessional care team models to other neighbourhoods in partnership with our primary care partners.

3) Support the Success of our New Primary Care Network – The ETHP is very excited to welcome our newest Anchor Partner, the East Toronto Family Practice Network (EasT-FPN). Full engagement of primary care at every level of the ETHP is critical to the success of an integrated model of care in East Toronto. Together, the ETHP will develop multiple ways to engage and connect with local family physicians so they can continue to be an integral part of the design and evolution of integrated care. The ETHP are also working on a financial plan as part of our shared commitment to develop and sustain our partnership.

4) Streamline Access and Navigation, enabled by Digital and Virtual Care: This includes providing easier access to information and access to services, reducing the burden of chronic disease, and improving coordination of care to support patients and their caregivers. For our Year 1 focus, we will: finalize our asset maps of services that support our Year 1 populations; create digital navigation tools for local services such as Youth mental health and wellness programs; and, establish patient navigators to support seniors with chronic disease and caregivers with health system navigation, service planning, care plan accountability, and one touchpoint for hospital to community transitions. For individuals who access the Emergency Department related to substance use we will coordinate access to community services based on similar models implemented at peer hospitals.

5) Improve population health and health equity: This includes reducing gaps in care and improving coordination of services for vulnerable, marginalized and under-served populations. For our Year 1 focus, we are targeting improvements for seniors living in Toronto Community Housing buildings, youth with mental health concerns, and adults with substance use issues.
Our overall vision for care redesign is centred on creating integrated, community-based health and social care teams across our 21 neighbourhoods that will support 24/7 access, and link to acute care, specialty care and other regional services as depicted in the graphic below.

Unlike our current siloed health care system, through our neighbourhood-based model of integrated care, people will experience one local system that provides simple access to health services and social supports, navigation and care coordination, inter-professional/ interorganizational teams, and streamlined communication of health and social care providers. This model focuses on simplifying the system for patients and frontline staff, maximizing current system investments and enhancing efficiency and effectiveness. Key enablers of this model of care are:

  • A simplified model for care transitions, with established care pathways that support patients to move easily from hospital to home;
  • Integrated, neighbourhood-based care teams, that align interprofessional teams from home care and community support services with primary care;
  • Care Coordinator/Navigators aligned to neighbourhoods / specific geographies using existing staffing resources from organizations that currently provide these services;
  • Access to regional supports including, but not limited to; acute care, specialty care, 24/7 call centre support services for patients and caregivers, virtual care and remote monitoring; and,
  • Digital communications and integrated information systems to support care teams, patients and caregivers with real-time access to patient health information and care plans that address the full social determinants of health.

Digital Health

The ETHP Digital Health Team has created a vision and a strategy for advancing virtual care, access to health information, information sharing, and quality improvement. Our overarching goals for the ETHP Digital Strategy are:

1. Achieving Digital Connectivity – to allow for the exchange of information and open communication that is fundamental to an integrated system of care

2.Digital-First Customer Service – to prioritize solutions that support health equity, positive experiences and flexible virtual care options

3. Fostering an Intelligent Learning System – to optimize our use of population health and care data, advance predictive capabilities, provide centralized supports and enable innovation

Specific solutions included in our Digital Strategy include expanding the use of the MyChart application across our partners, testing a patient-oriented portal, leveraging existing app-based technology to facilitate 24/7 access to support for patients and caregivers, expanding use of virtual visits, and enabling secure messaging between providers (and eventually patients and caregivers). The ETHP are in the process of developing a data-sharing agreement as well as common policies for privacy, security, cyber-security and data governance.

The Province’s policy shift to the Ontario Health Team model has provided a substantial opportunity for East Toronto to spread and scale the work we have already started, as well as creating new platforms for change and innovation across all our provider partners. In our application we have identified specific actions the provincial government can take to help us accelerate our efforts (including addressing policy barriers, providing resources and funding support in specific areas, and supporting provincial digital solutions), which we would be pleased to discuss further. We are excited to submit our full application and are confident that we are ready to be one of the province’s first Ontario Health Teams.

Sincerely,

Anne Babcock
President and CEO, WoodGreen Community Services
On behalf of the East Toronto Health Partners

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Dr. Rueben Devlin, Special Advisor and Chair of the Premier’s Council on Improving Healthcare and Ending Hallway Medicine
Helen Angus, Deputy Minister, Ministry of Health
Marie-Lison Fougère, Deputy Minister, Long-Term Care
East Toronto Health Partners

The Full Application for ETHP to become an OHT can be read here.

Toronto Star: Overdose prevention workers save thousands of lives, but who’s saving theirs?

Keren Elumir and Sarah Greig prepare injections at the Moss Park overdose prevention site. (Photo by MOE DOIRON)
Keren Elumir and Sarah Greig prepare injections at the Moss Park overdose prevention site. (MOE DOIRON)

Overdose prevention workers save thousands of lives, but who’s saving theirs?

By Sandro Contenta, Feature Writer

Wed., July 3, 2019

Keren Elumir saves lives at the Moss Park overdose prevention site in Toronto. It is relentless work: a particularly bad day saw 10 people overdose in a six-hour period.

“We were kind of joking the other day that we cleaned the entire floor of the Moss Park site with our jeans because we wrestled with so many heavy overdoses,” says Elumir, a 49-year-old registered nurse.

A bit of harmless humour helps in a job where grief and trauma are non-stop.

First responders have long had to struggle with the emotional intensity of jobs meant to save lives. But rarely have on-the-job grief and trauma been as chronic — and so lacking in supports — as on the front lines of the opioid overdose crisis.

They save thousands of lives — people were revived from overdoses 2,275 times in Ontario’s 24 federally approved injection sites in 2018. Yet they are among the most precarious workers in the labour market, many struggling with low pay and no benefits.

Burnout and turnover rates are high. Others soldier on, wounded.

[CAPTION: Keren Elumir says one of the positive aspects of her work is “we have this beautiful, intimate relationship often with people that in a way almost become family.” And the support goes both ways.  (Moe Doiron)]

“People care very deeply, so they’ll keep working even if it’s hurting them,” says Matt Johnson, co-ordinator of the overdose prevention site at Parkdale Queen West Community Health Centre, who estimates he’s revived more than 200 people over the years.

The emotional and physical toll on employees has a leading agency in the field questioning the future viability of the supervised consumption system.

“This type of model is not sustainable when we know the overdose crisis is getting worse,” says Julia Barnett, manager of supervised consumption services at South Riverdale Community Health Centre, which runs the Moss Park injection site and another in the Leslieville neighbourhood.

Trauma is the order of the day for Moss Park’s 11 workers.

In the first three months of 2019, the Sherbourne St. site was visited 6,484 times by drug users. Workers reversed 257 overdoses, usually by pumping oxygen into the victim, sometimes by injecting opioid-blocking naloxone. None of Toronto’s nine supervised injection sites saved more lives during that period.

With Moss Park open six days a week, six hours each day, workers save an average of one life every two hours.

Elumir recalls a day late last year that initially stood out because it was uneventful. Not a single person overdosed during her shift. She whiled away the down time by knitting a toque and looked forward to a Christmas concert after work, where her daughter was to play piano.

Minutes after the site closed at 6 p.m., a man banged on the locked front door begging to be let in. Elumir’s colleague, Sarah Greig, obliged. The man injected an opioid, dropped to the floor, and stopped breathing.

Elumir and Greig went to work. They injected him with naloxone but got no response. They injected him a second time and still nothing. They may have used a third shot but Elumir can’t say for sure. She once needed five shots to bring a victim back to life.

“It can be quite scary when a person isn’t responding,” she says. “If we don’t figure it out, they will die.”

They tried inserting an air tube down the man’s throat but couldn’t open his clenched jaw. Overdoses caused by fentanyl, a powerful and often deadly synthetic opioid, can make bodies rigid. So they placed an oxygen mask as tightly as possible around his nose and pumped air.

Thirty long minutes passed before the man revived.

Elumir had no time to debrief the near-death episode with her colleagues. She rushed to her daughter’s recital.

“I beat it across town to this beautiful church that was full of candles and twinkly lights,” she recalls. “I sat down and everyone around me was so happy, listening to the singing and watching the performances.

“And the contrast between this beautiful event and the hard overdose was so enormous that I could not stop crying. I cried my eyes out.”

No one has died in supervised injection sites. Yet the body count keeps rising from overdoses on the street or in private dwellings.

There were 4,460 opioid-related deaths in Canada in 2018, a third of them in Ontario. The victims are often marginalized people the workers care for daily and know well. Sometimes it’s a colleague: in Toronto, many front-line workers use drugs or did so in the past.

Who will die next is a constant worry.

Registered nurses are a small number of this largely precarious workforce. Most others are workers from harm reduction programs, which distributed clean syringes to drug users before supervised injection sites opened in Ontario in 2017. All are close to the drug-using community.

Leaving work at the office is an option few have.

“You’re seeing multiple overdoses every single day,” says Steff Pinch, a 29-year-old harm reduction worker. “You’re seeing people who are dead and you’re bringing them back to life. You’re walking in a room full of ghosts.

“And for a lot of workers, they do this as their job and then they go home and reverse overdoses. And then they walk the community and reverse overdoses. And it never ends. And then everybody dies.”

Frayed emotions are compounded by anger, a conviction that deaths would be prevented if governments cared enough to decriminalize the possession of all drugs and make safe supplies of opioids available. (The Toronto Board of Health supports both those recommendations.)

“It feels like you’re screaming into the void,” says Marissa Martins, a harm reduction worker who helps provide stable housing for drug users with Breakaway Addiction Services. “You’re saying, ‘This is what we need! This is what we need!’ and nobody is listening.”

Greig, a harm reduction worker for the past decade, says workers have no time to heal or to process what they’re going through. “How do you keep helping people without totally losing your mind?” she asks.

Few have the workplace benefits to help them find an answer.

Shoestring provincial funding keeps wages at about $15 to $25 an hour, although the few who are registered nurses can make more. Many are on short-term contracts or working part time — positions with no benefits. Workers who need counselling services, or anything else that might help manage the job’s chronic stress, usually can’t afford it.

The exception in Toronto is the downtown supervised injection service called The Works, staffed by eight full-time and unionized city employees who have benefits and higher salaries. Tor Sandberg, a spokesperson for the CUPE local representing the employees, says the city helped ensure lower job standards for others in the field by letting private agencies do the work the city should be doing.

In an attempt to help themselves, some formed the Frontline Workers Support Group, which resorts to a gofundme campaign to help access the most basic forms of self-care, including massages.

“It’s pretty messed up that it’s being crowdfunded,” says Tave Cole, a group organizer and harm reduction outreach worker, who describes on-the-job grief as a “non-stop nightmare.”

On June 10, Toronto’s Board of Health called on the Ford government to “Provide dedicated bereavement and trauma supports for frontline harm reduction workers, family members, and others impacted by the opioid poisoning crisis.”

In a written response to questions by the Star, the Ministry of Health and Long Term Care said it is “committed to supporting front-line harm reduction workers” and others hit by the crisis.

The statement, emailed by spokesperson David Jensen, noted the ministry funds the AIDS Bereavement and Resiliency Program of Ontario (ABRPO), which has expanded its work to train agencies running injection sites on “debriefing” sessions that help workers emotionally, mentally, physically and spiritually.

The government says it also plans to invest $3.8 billion over the next decade to implement a “comprehensive and connected mental health and addictions treatment strategy, including a “Centre of Excellence” to help people access “integrated and standardized” services across the province.

Provincial funding also includes $31.3 million for up to 21 sites called Consumption and Treatment Services (CTS). It’s a new harm reduction model that continues supervised injections while adding a focus on connecting drug users to treatment and rehab. Budgets for these new sites “can include funding for benefits and training for frontline staff,” the ministry states.

Reality at injection sites is generally different. Funding that rarely lasts more than a year means requests that include benefits stand little chance of ministry approval, says Barb Panter, manager of housing and drop-in services at St. Stephen’s Community House in Kensington Market, which includes a supervised injection site staffed by six workers.

“Our model is very cost-effective, but it also means our part-time and contract staff don’t get benefits,” Panter says. “That’s just a reality in the field.”

St. Stephen’s supervised site had been funded by the previous provincial Liberal government. It was one of two agencies in Toronto that failed to get renewed funding under the new CTS model. Its injection site continues to function with federal permission and private donations.

St. Stephen’s CTS application had a budget line for transit fare so that drug users could travel to the kind of rehab the ministry considers a priority.

“They said, ‘No, take that out,’ ” Panter recalls, referring to ministry officials. “And we said, ‘How are you expecting people in Toronto, where it costs $3.25 for transit, to get to the detox centre?’ And they didn’t really have an answer.

“So to talk about benefits for something as intangible as trauma and grief support doesn’t often go very far,” she adds.

Fifteen CTS sites were announced in late March, six of them in Toronto. The proposal accepted for South Riverdale’s Moss Park site would extend service to 12 hours a day, seven days a week. But the government has yet to hand over the funds, so in March, frontline workers were placed on month-to-month contracts.

“We don’t know if that financial agreement is going to be on a one-year basis or more long-term,” Barnett says.

There’s no indication the provincial government will act on the board of health’s request to fund trauma and grief supports, Barnett adds, so South Riverdale is moving on its own.

The community health centre has siphoned $20,000 from its other programs for a one-year pilot project to give its injection site workers access to counsellors, therapists or Indigenous elders, along with self-care courses in yoga or art, for example.

Gillian Kolla, a PhD candidate at the University of Toronto’s Dalla Lana School of Public Health, who is researching the impact of opioid-related trauma on health, believes funding struggles reflect a dismissive provincial attitude.

“I don’t think this would be happening with any other health issue,” Kolla says. “It is very much linked to the stigma around people who use drugs. It’s very much the idea that these people are disposable.”

Thomas Egdorf, director of the AIDS Bereavement and Resiliency Program, links the trauma struggles of workers in the opioid overdose crisis to social attitudes prevalent during the deadly height of HIV and AIDS in the 1980s.

“One of the challenges is disenfranchised grief, which is grief that isn’t supported, really, by society,” Egdorf says.

“Often, when workers reach out for support outside of their community, they get responses like, ‘Well, what did you expect? They inject drugs.’ It’s like you don’t have the legitimacy to grieve because ‘of course this person was going to die.’

“So traditional places where people could go for support — grief counselling, grief groups — don’t often work in these situations because of the judgments a lot of people attach to how someone dies,” Egdorf adds.

At the entrance to the Moss Park overdose prevention site, around a wall painting of an eagle with a syringe in its claws, are the portraits of a dozen people who recently died. Some were front-line colleagues, including Angela Kokinos, who saved lives at St. Stephen’s until her death in September 2018, and Leon “Pops” Alward, a trailblazing volunteer at the Moss Park site when it began as a cluster of tents in 2017. Others are clients the workers knew well.

“Many of the people we interact with in our work have been ostracized and stigmatized and pushed away by other people,” says Marissa Martins. “We sometimes are the only safe place for people to be authentically themselves — artistic, musical, loving, funny. So you see all these beautiful things that people are finally given permission to be.

“You grow fond of them, and then you lose them,” she adds.

[CAPTION: Says harm reduction worker Steff Pinch: “You’re seeing multiple overdoses every single day. You’re seeing people who are dead and you’re bringing them back to life. You’re walking in a room full of ghosts.”  (Toronto Star)]

For Steff Pinch, the death of 45-year-old client Rodney Rizun forced the need for a break.

Rizun, a talented musician and “born storyteller,” was shot dead in an Etobicoke residence on June 5, 2018. His unsolved murder capped a terrible four-month period when almost 20 of Pinch’s clients, friends and relatives died from natural causes, violence or overdoses.

At the time, Pinch was a harm reduction worker at the LAMP Community Health Centre in Etobicoke. LAMP isn’t a supervised injection site, but it offers drop-in services for drug users.

Pinch says clients would often inject in the centre’s washrooms or around the grounds, causing Pinch and co-workers to scramble in and out of the building saving lives. “For a while, it was every single week someone I knew was dying,” Pinch says. “It was overwhelming.”

Pinch’s only self-care option was short-term medical leave under Employment Insurance. That meant navigating multiple hoops, including finding a doctor at a walk-in clinic and paying for medical forms to be filled.

Pinch ended the EI “stress leave” about halfway through the 15-week period because the doctor would only continue approving it if Pinch went on anti-depressants.

“I refused to go on psychiatric medication because I don’t have a psychiatric problem,” Pinch says. “Everyone is dying! I make sense!”

Harm reduction workers are a tightly knit group and Pinch counts Liz Merlos, who heads harm reduction efforts at Parkdale Queen West Community Health Centre, as a supportive ally.

Merlos has spent months on a waiting list for subsidized counselling to deal with anxiety attacks. She initially called the employer assistance plan but a counsellor told her she needed more help than they could offer.

“There are many times when I’m like, I can’t go to work today, I just can’t,” says Merlos, who grew up in Parkdale and helped save her younger brother from an opioid overdose two years ago at her mother’s home. “I’m struggling with a lot of the things that my peers and colleagues are struggling with.”

She dreads extended breaks from the job — even long weekends — because “every time you come back, someone is gone.”

[CAPTION: Liz Merlos in a safe injection room at the Parkdale Queen West Community Health Centre. Merlos has spent months on a waiting list for subsidized counselling to deal with anxiety attacks.  (Toronto Star)]

Almost 900 injections were supervised at Merlos’s site in the first three months of this year. She notes the work goes much beyond reversing overdoses. She and her five co-workers often act like counsellors, listening to heartbreaking stories of childhood trauma and loss.

“You bring it home,” Merlos says. “You bring it into your relationships and your friendships. And it has a toll because it’s so overwhelming. I tell my mom things and my son things and they’re, like, traumatized and worried for me.”

Some years ago, Keren Elumir made a deal with a colleague: “Alcohol wasn’t going to be our go-to on a really bad workday.”

She began work as a street nurse in downtown Toronto in the late 1990s at a Christian charity called Sanctuary, which operates drop-in services for the homeless and marginalized.

There were moments of acute distress, like the time Elumir cut down a suicidal client she knew well from a tree in a downtown park. But she quickly developed what she describes as “this weird, beautiful intimacy” with the people she served. It felt very much like a privilege.

“We hear their stories, their fight for self-respect, their fight against shame, their fight to stay alive today,” she says. “We witness the effects of childhood trauma, of things that nobody should have ever gone through. And we’re often the receptacles of their wishes and dreams.

“So we have this beautiful, intimate relationship often with people that in a way almost become family.”

The support went both ways. Years ago, when her first child was born, serious complications kept her baby in hospital for days.

“I would come out of Mount Sinai Hospital and there was a crew of guys waiting for me to get an update on how my baby was,” she recalls.

“The ones who are still alive — a lot of them are not — feel like they have invested in my child. They’re as excited about her graduating from high school almost as much as I am.”

As clients died premature deaths — from violence, overdoses and hard lives on the streets — Elumir began a personal act of remembrance. She listed their names in a journal.

[CAPTION: Registered nurse Keren Elumir, right and harm reduction worker Sarah Greig at the Moss Park overdose prevention site. Workers like them save thousands of lives; in 2018, people were revived from overdoses 2,275 times in Ontario’s 24 federally approved injection sites.  (For the Toronto Star)]

About five years ago, the number of names rapidly grew. Fentanyl was by then commonly being used by dealers to give street drugs a more powerful high, causing a sharp rise in overdoses. In 2018, almost 75 per cent of accidental opioid-related deaths in Canada involved fentanyl.

One of the people fentanyl killed was Chris, an Indigenous man Elumir knew well. He’d greet her with a big hug and minutes later Elumir would inevitably notice one of her earrings missing.

She visited Chris one day at the Leslie Street Spit, where he camped, and saw her earrings hanging from a tree like wind chimes. “He thought it was hilarious,” she says.

Chris told her of being taken from his parents and placed in a residential school. He was maybe 6 years old. School authorities shaved his head and treated it with kerosene to make sure he didn’t have bugs.

“I don’t think he ever lost that sense of shame and fear he experienced as a little kid,” Elumir says. “He really struggled with white people. He told me numerous times that he didn’t know how to deal with wanting to hate me and wanting to love me all at the same time.”

Chris asked Elumir for help one day — his long, clumped hair was infested with lice. Combing out the bugs was impossible. Chris told Elumir to shave it off.

“He sat and cried through the whole thing,” she says, holding back tears.

Chris vanished sometime later. Rumour spread on the street that he had died. So a memorial service was held for him at Sanctuary. Chris’s street friends packed the place. In the middle of the service, a tall man walked in and asked, “Whose funeral is this?” It was Chris, fresh out of jail.

“He actually showed up at his own memorial service!” Elumir says. “It was crazy. So we used to joke that there were resurrections happening on the street.”

Three years ago, on a rainy day, Elumir found Chris lying dead of an overdose in a doorway. By then she had stopped putting names on her list of the dead. “It was too many. It was too painful.

“It’s this contrast of grief and rage,” she says. “People matter! Why can’t (governments) get that it’s not as simple as, ‘go to detox,’ it’s not as simple as, ‘go get a job.’ ”

Elumir can’t seem to shake Chris’s ghost. “I see a tall, slender, Indigenous man who walks like his feet are sore, and I think it’s him and I go to yell his name and, no …”

She needed a break after 14 years as a street nurse and joined a family health team in North York, caring for pregnant women and babies. But when tents for a safe injection site were raised at Moss Park in 2017, she immediately volunteered. And when the site moved into the Sherbourne St. building, she took a job there part time, with no benefits.

“I don’t think I really have an option,” Elumir says, when asked why she continues to do the traumatic work. “This is a community of people I love. I cannot imagine walking away from that as long as there is a need.”

By the numbers

137,711 – visits to 24 officially designated supervised drug consumption sites in Ontario in 2018

2,275 – overdoses reversed at designated consumption sites in 2018

59,257 – visits to designated consumption sites in first 3 months of 2019

1,017 – overdoses reversed at consumption sites in first 3 months of 2019

1,471 – deaths apparently due to opioid overdoses in 2018

0 – deaths at consumption sites in 2018, and first three months of 2019

Source: Ontario and Canada health ministries

Correction — July 3rd, 2019: A previous version of this story misspelled Rodney Rizun’s last name.

Sandro Contenta is a reporter and feature writer based in Toronto. Follow him on Twitter: @scontenta

 

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New Study Published: Police presence near supervised consumption sites in Toronto discouraging access, June 10, 2019

For Immediate Release
June 10, 2019
BC Centre on Substance Use

Police presence near supervised consumption sites in Toronto discouraging access

Supervised consumption sites are being expanded across Canada in response to opioid overdoses and other harms related to drug use. However, recent research suggests that policing in Toronto may be a key barrier to accessing this life-saving health service.

Researchers with the University of British Columbia interviewed clients at two Toronto health sites providing supervised consumption services (SCS), Parkdale Queen West Community Health Centre and South Riverdale Community Health Centre. They found the presence of police produced anxieties and fears of arrest and harassment among clients. Findings were published in the peer-reviewed Harm Reduction Journal, the first to look at clients’ experiences with SCS in Toronto.

In addition, they found that policing practices were not applied consistently across both sites. In one neighbourhood, people who inject drugs were more likely to be profiled by police than in the other. In the neighbourhood with less police presence, clients reported feeling safer about using the services.

When asked about police presence, one participant said: “Oh, I wouldn’t even come in [to the SCS]. I would walk right past. I’m not in trouble for anything, but they’ll get ready to just stop you and talk to you for no reason. And nobody wants that.”

“It’s critical to understand how people’s experiences with police shape access to supervised consumption services,” says Geoff Bardwell, lead author of the study. “Many people who would benefit from these harm reduction programs have negative experiences with police as a result of the criminalization of drug use and poverty. As a result, the mere presence of police at a health service site may discourage them from accessing these services.”

At SCS, people are immune from arrest and criminalization related to their substance use. However, the findings point to a disconnect between the goals of policing and supervised consumption services. As a result, the study authors are recommending that police policies and practice be changed to ensure optimal access to SCS in Toronto.

“Since this study began, the dial has moved on police engagement locally and provincially and there is more opportunity now to create additional safe spaces for drug users and a stronger push for the availability of a regulated and safe supply. We know that this is a public health issue and not a criminal justice issue. The study definitely re-enforces the need for decriminalization more broadly,” said Jason Altenberg, Director of Programs and Services, South Riverdale Community Health Centre.

More than 10,000 Canadians died from opioid-related overdoses between January 2016 and September 2018. As part of the federal response, Health Canada has approved more than 40 supervised consumption sites across the country, including 10 in Toronto, identifying SCS as a critical part of a harm reduction approach to prevent overdoses and accessing treatment and social services.

The study authors recommend the establishment of a non-enforcement boundary outside of SCS in order to lessen the effects of criminalization that drive some people who use drugs away from accessing services. The findings are supported by recent recommendation from Toronto’s Medical Health Officer, who said the criminalization of people who use drugs “forces people
into unsafe drug use practices and creates barriers to seeking help.”

Implementation contexts and the impact of policing on access to supervised consumption services in Toronto, Canada: a qualitative comparative analysis

Contact:
Kevin Hollett, BC Centre on Substance Use
[email protected]
778-918-1537

SRCHC Funded for Consumption Treatment Services at 955 Queen Street East and 134 Sherbourne Street.

Ontario’s Government announced funding for 15 Consumption and Treatment Services sites today.

News Release

Ontario Continuing to Build a Connected Mental Health and Addictions Treatment System

Ministry of Health and Long-Term Care

Ontario’s Government for the People is putting patients at the centre of our integrated health care system. As part of this commitment the Government of Ontario is ensuring those struggling with drug addiction can connect with full wrap-round supports for treatment and rehabilitation services, by approving 15 Consumption and Treatment Services sites in communities with high need and will continue to accept applications from interested organizations.

“Our government takes the opioids crisis very seriously,” said Christine Elliott, Deputy Premier and Minister of Health and Long-Term Care. “That’s why we’ve created a new Consumption and Treatment Services model that will continue to save lives by preventing overdoses and connecting people to primary care, treatment, rehabilitation, and other health and social services to ensure those struggling with drug addiction get the help they need.”

To support building a comprehensive and connected mental health and addictions treatment system, Consumption and Treatment Services applications were reviewed against the program criteria, which includes:

  • Addressing local needs
  • Offering integrated wrap-around health and social services
  • Providing evidence of community support and demonstrating a commitment to ongoing community engagement
  • Considering proximity to other Consumption and Treatment Services as well as licensed child care centres, parks and schools
  • Meeting accessibility criteria and laws

“This announcement is part of our commitment to invest $3.8 billion over the next 10 years to finally develop and implement a comprehensive, connected and integrated mental health and addictions treatment strategy, centred around patients, family and caregivers,” said Elliott. “We will continue to make mental health and addictions a priority and work toward creating an Ontario where everyone is fully supported in their journey toward mental wellness.”

Background Information

Additional Resources

CBC News: Toronto Public Health strategy calls for culturally safe care, Indigenous-led consumption sites

‘When I’m around my people, I feel safe’: City aims to combat Indigenous overdoses amid opioid crisis

Harm reduction work ‘needs to be driven by our own community,’ says Les Harper, who is one of only a handful of Indigenous people working in the supervised consumption sphere in Toronto, despite huge rates of drug use among Indigenous residents. (Jon Castell/CBC News)

Catching up in the bustling lobby of an east-end Toronto clinic and supervised consumption site, Les Harper and Lawrence Boyer have lots to talk about — and lots in common.

Both men understand the complicated nature of drug use, from the pleasures to the potentially-deadly pains. Both have also lost loved ones to overdoses — roughly 30 friends for Boyer, and three brothers, one sister, and various cousins, aunts, and uncles for Harper.

And, like so many of those affected by addiction, both men are Indigenous.

But while Boyer is a client and two-time overdose survivor, Harper is on the other side.

Tall and soft-spoken, he is one of only a handful of Indigenous people working in Toronto’s harm reduction community, even though he estimates Indigenous community members make up at least half of all those seeking services, despite making up less than three per cent of the city’s population.

It’s a lopsided arrangement both men agree needs to change.

Harm reduction work “needs to be driven by our own community,” said Harper, a staff member at the supervised consumption site at South Riverdale Community Health Centre who is from the Saddle Lake Cree Nation northeast of Edmonton.

“I don’t know one Indigenous person it doesn’t affect,” he added. “That hasn’t had somebody pass away from an overdose.”

The city, it seems, is listening. Released this month, a new Indigenous overdose strategy, developed by an independent Indigenous contractor with input from the community and support from Toronto Public Health, stresses the need for Indigenous-led consumption and treatment spaces as a way to combat the stigma and isolation experienced by Indigenous people who use drugs.

NEW YORK, NY – OCTOBER 07: A heroin user prepares to shoot up on the street in a South Bronx neighborhood which has the highest rate of heroin-involved overdose deaths in the city on October 7, 2017 in New York City. (Spencer Platt/Getty Images)

The recommendations tie into the city’s broader overdose action plan to combat the opioid crisis, which has led to the deaths of at least 16 people in Toronto so far in 2019 and roughly 450 people over the previous two years.

The “desperately needed” strategy is also the first of its kind in Canada, according to city councillor and board of health chair Joe Cressy. He said it was more than a year in the making, and in that time, the city learned it can’t use “just a one-size-fits-all approach.”

Thanks to recommendations from Indigenous drug users, the strategy calls for Toronto Public Health to request federal and provincial funding support for Indigenous agencies, drop-in spaces, and safe consumption and treatment sites.

It also stresses the importance of weaving Indigenous elders, healing circles, and traditional medicines and teachings into the city’s health care system.

“Currently, the perception is that service workers are generally not knowledgeable about Indigenous culture and history and colonialism, including the assimilation and repression of residential schools, the 60s scoop, and Indian hospitals,” the report reads.

“This results in spaces in which [Indigenous people who use drugs] feel judged and like misfits.”

The ‘desperately needed’ strategy is the first of its kind in Canada, according to city councillor and board of health chair Joe Cressy. (Paul Borkwood/CBC)

That’s a feeling Boyer, an Ojibway father of four, knows well.

The 51-year-old began using drugs — mainly crack cocaine — roughly two decades ago. Now a regular at the Queen Street E. centre where Harper works, Boyer grew up in a home with alcoholic parents and an abusive father. Not everyone understands that experience, he explained.

“When I’m around my people, I feel safe and at ease,” he said. “When I’m not, I’m on edge, and have my guard up.”

‘We know mainstream approaches don’t work’

Research shows “mainstream” approaches don’t work well for Indigenous families, noted Jeffrey Schiffer, executive director at Indigenous non-profit Native Child and Family Services of Toronto.

While he said the city is behind the times when it comes to co-developing strategies with the Indigenous community, Schiffer also praised Toronto Public Health for the new “proactive” direction.

“We’re also at a point where we’re recognizing that Indigenous approaches and tools are beneficial to all people,” he said.

Lawrence Boyer, left, is an Ojibway father and two-time overdose survivor. Les Harper, right, is one of only a handful of Indigenous people working in Toronto’s harm reduction community. (Jon Castell/CBC News)

The strategy report, heading to the board of health for approval later this month, stresses the legacy of trauma facing Indigenous residents today — from child protective services interventions to the ongoing crisis of missing and murdered Indigenous women.

Fringe programming in care settings is not enough, the report continues, because healing can only come when non-Indigenous people are allies “rather than accomplices in continued cultural degradation.”

To implement the strategy, Toronto Public Health has pledged to dedicate an Indigenous staff resource to work with the city in collaboration with Indigenous service providers and community members, wrote de Villa in a note introducing the report to the board of health for its Feb. 25 meeting.

But with many of the recommendations hinging on funding from higher levels of government, some question what can be accomplished.

“How is it going to be implemented? What are the resources behind it?” Schiffer asked.

In particular, it’s unclear how receptive the province would be to the calls for funding and support.

Research shows ‘mainstream’ approaches don’t work well for Indigenous families, says Jeffrey Schiffer, executive director at Indigenous non-profit Native Child and Family Services of Toronto.

While federal Health Minister Ginette Petitpas Taylor has previously said overdose prevention sites “save lives,” Premier Doug Ford claimed the sites offer little long-term help for people with addictions while on the campaign trail last year.

Once elected, his government announced a freeze on the expansion of overdose prevention sites, despite calls from harm reduction workers and Mayor John Tory for a scaling-up of efforts instead.

It was only in late October that the Ford government announced it will keep funding supervised drug consumption sites, but their focus will change to help users receive treatment and get rehabilitated. And as recently as late last month, some sites were unsure if the province would accept their funding applications.

Against that backdrop, Harper also wonders about the strategy’s future.

Standing outside the jam-packed health centre where he works, he said one thing is clear: Drug use is affecting Toronto’s Indigenous communities at a far higher rate than non-Indigenous groups, meaning the city’s approach needs to shift before the crisis gets worse.

“Every Indigenous person I know who works in social work will have a relative come into their space,” Harper said. “A non-Indigenous person will work their whole life — and never have a family member walk in their door.”

https://www.cbc.ca/news/canada/toronto/when-i-m-around-my-people-i-feel-safe-city-aims-to-combat-indigenous-overdoses-amid-opioid-crisis-1.5025560

CATIE: Programming Connection Case Study on keepSIX Supervised Consumption Service

CATIE: Programming Connection. Shared Experience, Stronger Programs.

CATIE includes a case study of SRCHC’s keepSIX Supervised Consumption Service in Programming Connection.

The Programming Connection is an online toolkit that highlights promising approaches to frontline programs in HIV and hepatitis C prevention, testing, treatment, care and support efforts in Canadian communities.

Canadian AIDS Treatment Information Exchange (CATIE) strengthens Canada’s response to HIV and hepatitis C by bridging research and practice. CATIE connects healthcare and community-based service providers with the latest science, and promote good practices for prevention and treatment programs.

https://www.catie.ca/en/pc/program/keepsix

CBC News Visits Moss Park Overdose Prevention Site

‘When people come here they feel safe’: Finding sanctuary at the Moss Park Overdose Prevention Site

A rare look inside the government-sanctioned overdose prevention site in Toronto’s Moss Park neighbourhood to meet people who work there and those who use it.

Site aims to save lives, but also gives users a sense of community and purpose

‘We need more places like this,’ says Akosua Gyan-Mante, one of the people who uses the Moss Park Overdose Prevention Site in Toronto. ‘I don’t want to die alone in an alley.’ (Evan Mitsui/CBC)

“I’ve lost 11 friends this year … most people don’t lose that many in a lifetime.”

Dave Gordon reflects on the toll drugs have taken on the people in his life as he sits at the Moss Park Overdose Prevention Site sketching in his notebook. He’s been on and off opioids himself for decades.

“I don’t want to lose any more friends.”

More than 9,000 people have died from accidental overdoses in Canada since January 2016 — 2,000 of them in the first half of 2018 alone, according to numbers released by the Public Health Agency of Canada.

While Canada struggles with a relentless and deadly opioid crisis, places like the Moss Park site in Toronto offer help. They allow people to bring their drugs inside and safely use them under the supervision of trained staff.

CBC News was granted rare access to spend some time at the government-sanctioned Overdose Prevention Site and meet people who work there, as well as those who use it.

Gordon knows what’s driving the grim statistics around opioids only too well. He has overdosed, and described it as, “the most horrible feeling in the world. Feeling like my life was slipping away. I had no control.”

Dave Gordon sketches at a table in the Moss Park Overdose Prevention Site. (Evan Mitsui/CBC)

He now spends his time at the Moss Park site — partly to use safely, but also because it’s a place to be with friends and it has allowed him to re-discover his love of drawing.

Gordon is also giving back, handing out harm-reduction safety kits in the neighbourhood to help others in the community.

I’m trying to pay society back for my mistakes.– Dave Gordon

“I’m trying to pay society back for my mistakes.”

The Public Health Agency of Canada says 72 per cent of accidental overdose deaths this year involved fentanyl. And a lot of them happen when people use drugs alone.

“So when people come here they feel safe. They feel supported,” says Sarah Greig, an overdose response worker at Moss Park. “They don’t feel shamed and blamed and stigmatized, as they have been by their family, by some health care providers and by some social service providers.”

Greig says the people who come to Moss Park are more like friends, and they are building a community.

The overdose prevention site began as an unsanctioned, volunteer-run outdoor tent in Toronto’s Moss Park. It had over 9,000 visits and reversed more than 200 overdoses between August 2017 and June 2018.

Medical supplies at Moss Park. The site has been seeing more than 100 visitors a day and reversed more than 50 overdoses since it received provincial funding in July.

After becoming a satellite of the South Riverdale Community Health Centre, the site received provincial funding and an exemption through the provincial OPS program, allowing it to move indoors in July this year.

Since then, it has had thousands more visits — over a hundred a day — and reversed more than 50 overdoses.

The future of these sites remains uncertain, however, as local and provincial governments grapple with their pros and cons and who will fund them.

Moss Park’s government funding is set to expire on Dec. 24. The organizers have re-applied, but the province is imposing stricter regulations on where overdose sites can operate, which could jeopardize the Moss Park operation.

The fact that the site might be shut down worries Akosua Gyan-Mante.

“We need more places like this,” says the 26-year-old, a regular at Moss Park. “I don’t want to die alone in an alley.”

The Moss Park site ‘is giving me a fighting chance,’ says heroin and fentanyl user Akosua Gyan-Mante. (Evan Mitsui/CBC)

Gyan-Mante never thought she would be a drug user — growing up in B.C. in a home with a loving father, she had dreams of being a doctor. She moved to Toronto six years ago, started college and had a son.

Then things fell apart. She began injecting heroin and fentanyl this summer after her boyfriend introduced her to it.

“I’m lonely and depressed, and it makes me feel better,” Gyan-Mante says, explaining that drugs help numb the emotional pain.

She overdosed at the site this past October. Greig was there to reverse it.

We need to nurture people and we need to point out people’s strengths instead of just identifying their weaknesses.– Sarah Greig

“We need to nurture people and we need to point out people’s strengths instead of just identifying their weaknesses,” Greig says, adding that people use drugs for a wide range of things.

“This is my support system right here … [the hope that this] shitty existence will get better,” says Gyan-Mante as she hugs Greig, wiping a tear from her eye.

“It [the site] is giving me a fighting chance. It gave me life. It’s giving me another day, another week, another month of being OK.”

Gyan-Mante, centre, overdosed at the Moss Park site this summer. Front-line response workers Sarah Greig, left, and Tony, right, reversed the overdose. (Evan Mitsui/CBC)

Far from just a place to use drugs, the site also offers a hot meal provided by donations, a warm place to hang out during winter, and information on support services if people want them.

The site operates from noon to 6 p.m. and is closed on Mondays.

“I hate Mondays,” Kevin Drake says as Greig watches him use heroin. “I’ve been to different sites. And this is the best.”

Drake says he has overdosed 15 times in his life. But when he is at Moss Park, he does not feel shame.

Instead, it’s replaced by pride. He is known as a guy who is always cleaning up, mopping floors and organizing the space, making sure it looks its best.

Sarah Greig watches Kevin Drake as he prepares a dose of heroin, to make sure he doesn’t overdose – and so she can take immediate action if he does. (Evan Mitsui/CBC)

“I do worry, but I use Fentanyl … that’s why I come here. That’s why I choose not to do it by myself. Because here — you’re guaranteed to leave here alive.”

The site offers safety, and it also harbours stories of hope.

Drake got a job shortly after CBC’s visit. Gordon is being asked to speak at universities about his experiences, to help find solutions to community drug issues. Gyan-Mante is hoping to reunite with her son permanently.

And that hope is exactly the point of these sites, Greig says.

“When I reflect and I think about what I’ve been doing for the past decade, a lot of it is actually nurturing people and pointing out their worth. Convincing people that they are worthy of love and affection, and that they can do anything that they want to do.”

Please see this story released by CBC News on how the Moss Park OPS aims to save lives and give drug users a sense of community and purpose:

https://www.cbc.ca/news/canada/national-moss-park-overdose-prevention-site-opioids-1.4929844